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Adventures of being a cripple

post #1 of 158
Thread Starter 
I get patted on the head. Old people give me money out of the blue(I don't take it out of principle.), I have to constantly hear from ignorant people about how the ADA is a bad thing. People practically break their necks to get in front of me to open a door for me(My arms are bigger than the majority of a walking person's, but I know they mean well..). But yesterday, I had an especially bizarre day with walkies.

I got a H1N1 shot at the local community college where I've taken classes. It was an experience.

I dig up my ID, go there and go to the first table where I get the paperwork, where the girl explained, slowly, what to fill out. I smile and nod and fill it out, give it back. She frowns and explains, slowly, that I didn't date it. Guides my hand to where to date it. I resist yanking her arm off. She takes my hand and guides me to the next table and explains to the woman in a whisper "He's a little confused." I blink in surprise. The lady takes my ID and says to the girl "You know what to do, stay by his side AT ALL TIMES." I blink again and ask why. She says there a lot of obstacles. I look. It's a wide path, I'd have to knock over the tables on purpose. I'd have to physically ram the chairs in the waiting area. I tell her, I'll be fine. She smiles and laughs indulgently and explains slowly that it's for my safety. I laugh with her and then lean over in her face and say I don't need a babysitter. She blinks in surprise at my sudden aggression and nods.

The next table.

The nurse there gets my paperwork, and gets up and walks me to the vaccination station a staggering two feet away. I roll up my sleeve, first nurse frowns and tells the younger nurse that I'm going to need some help. I ask why. Younger nurse explains they need my shoulder. Older nurse smiles and says cheerfully "Shirts can be tough!"

I'm getting tired now.

So, pushing older nurse's hand away, I perform the Herculean task of taking my sleeve off. The older nurse tells me not to look because the needle is big and scary. I smile and nod and proceed to tell the story of how when I was 12 and prepping for a spinal fusion surgery, they did a test on my arm to see how well I bled. I watch the needle. I push her arm away again when starts to help me with my sleeve. I resist saying "TaDa!" when the shirt is fully back on.

They guide me to the next table where I get a sticker(Which, to be fair, everyone got one) and I make a hasty retreat and glare at them as they push the door open for me.

I'm thinking the revolution needs to start real soon.
post #2 of 158
LOL, wow...

I have nerve damage in my hand, but it doesn't lead to any situations like that. If only I'd know I shouldn't hold the door for people in your situation, I would have stopped that a long time ago. I thought it was polite, I didn't know it was annoying.

I'd be curious to hear more of your adventures

1) Very well written
2) Insights into something I otherwise wouldn't have known about


Thanks, Cameron!

In fairness though... shirts can be tough. That's why I get dressed with assistance from my ladies in waiting. : P
post #3 of 158
I'm sure your experience was to the Nth degree, but I donate blood frequently, and the phlebotomists that work those things can be really hover-y & overprotective of everyone. And we almost alays got stickers, too (and cookies & juice, which they insist you take, whether you want it or not. I know they just want you to sit for awhile so they can observe if you're going to have an adverse reaction before they let you go, but that part's still kind of annoying at times). The best donations are with the more "hands off" crews. They're few & far between, unfortunately. I wonder if they were at all overprotective of all the other people getting the shots (albeit to a lesser degree) where you went?
post #4 of 158
Getting mad about this shit shows you have unreasonable expectations of people. If you let this kind of thing get to you, you're just to going to waste a ton of time on anger.

I find it's best to have your expectations of people match what they are, not what they ought to be. Just assume every new person is a vile, stupid, ignorant asshole. If a particular person isn't like that, he or she pleasantly surprises you. If a particular person is like that--and this is going to be the case most of the time--rather than angering you, that person simply meets your expectations.

How you avoid being an asshole yourself is holding your own person to the standard of what we ought to be, not what most of us are.
post #5 of 158
Thread Starter 
Quote:
Originally Posted by IggytheBorg View Post
I'm sure your experience was to the Nth degree, but I donate blood frequently, and the phlebotomists that work those things can be really hover-y & overprotective of everyone. And we almost alays got stickers, too (and cookies & juice, which they insist you take, whether you want it or not. I know they just want you to sit for awhile so they can observe if you're going to have an adverse reaction before they let you go, but that part's still kind of annoying at times). The best donations are with the more "hands off" crews. They're few & far between, unfortunately. I wonder if they were at all overprotective of all the other people getting the shots (albeit to a lesser degree) where you went?
They weren't. A few people were before me in getting their initial paperwork. None were coddled. They all walked.
post #6 of 158
Thread Starter 
Quote:
Originally Posted by Cuchulain View Post
Getting mad about this shit shows you have unreasonable expectations of people. If you let this kind of thing get to you, you're just to going to waste a ton of time on anger.

I find it's best to have your expectations of people match what they are, not what they ought to be. Just assume every new person is a vile, stupid, ignorant asshole. If a particular person isn't like that, he or she pleasantly surprises you. If a particular person is like that--and this is going to be the case most of the time--rather than angering you, that person simply meets your expectations.

How you avoid being an asshole yourself is holding your own person to the standard of what we ought to be, not what most of us are.
Wait, thinking I should be treated like an adult is unreasaonable? I don't go in thinking I'll be treated this way. I generally think I'll be treated like an adult.
post #7 of 158
Quote:
Originally Posted by Cameron Hughes View Post
Wait, thinking I should be treated like an adult is unreasaonable? I don't go in thinking I'll be treated this way. I generally think I'll be treated like an adult.
I'm just offering what seems to work best for me for dealing with the world as it is, not what I think things ought to be like.
post #8 of 158
I sympathize with your strength of feeling Cameron. It would suck hard to live in a world where everyone acted patronizing toward you.
post #9 of 158
I had no idea you were handicapped. Wheelchair, I assume? Any slowness or hesitancy of speech, anything beyond obvious physical impairment that would lead others to assume you needed extra attention?
post #10 of 158
Quote:
Originally Posted by nekkerbee View Post
I had no idea you were handicapped.
Me either! I will begin treating you differently immediately...

I teared up as I imagined how long it must have taken you to type all that, what with your affliction and the challenges it brings. Good for you!
post #11 of 158
I look forward to the next installment of your "Cripple Chronicles".

You need to install a cow-catcher/snowplow on the front of your chair and ram people.
post #12 of 158
Thread Starter 
Quote:
Originally Posted by nekkerbee View Post
I had no idea you were handicapped. Wheelchair, I assume? Any slowness or hesitancy of speech, anything beyond obvious physical impairment that would lead others to assume you needed extra attention?
Spina Bifida, paralyzed waist down, its the most common birth disease for being paralyzed, followed by cerebral palsy. Otherwise, I'm fine.
post #13 of 158
Thread Starter 
Quote:
Originally Posted by DARKMITE8 View Post
I look forward to the next installment of your "Cripple Chronicles".

You need to install a cow-catcher/snowplow on the front of your chair and ram people.
You have no idea how often I hear "You need a horn on that thing!" if I'm in a hurry. Or that I need a drink holder. Or a flag.(so people can see me coming.). My favorite though, of car jokes, is "You better slow down or you'll get a ticket!"
post #14 of 158
Quote:
Originally Posted by Cameron Hughes View Post
You have no idea how often I hear "You need a horn on that thing!" if I'm in a hurry. Or that I need a drink holder. Or a flag.(so people can see me coming.). My favorite though, of car jokes, is "You better slow down or you'll get a ticket!"
There was a guy in an electric wheelchair at my last job. You had to be careful around corners cause the guy would haul ass down the halls.
post #15 of 158
Quote:
Originally Posted by Cameron Hughes View Post
I resist saying "TaDa!" when the shirt is fully back on.
A wasted opportunity, Cameron! Wasted, I tell you!

Here's a totally charming, "Oh you poor helpless cripple" story to make you feel worse, or better, depending on your mood. But mostly to show you that treating handicapped people like they're helpless is more common than you think.

This happened about a year ago at this time. There's this really good sandwich place in the ground floor of my office building, so one day I decided to grab one for lunch. This place is pretty popular, plus it was freezing on this particular day, so it was a good excuse not to go outside, and as a result it was packed. So I'm standing in line, and then behind me was this guy in a wheelchair. Then there were two guys behind him, I can only refer to as "Douchebag #1" and "Douchebag #2".

First, Douchebag #1. He gets on line behind the guy in the wheelchair. Now, the guy in the wheelchair has just gotten there, and he's maneuvering his chair around to the best position to keep wheeling forward, but it's obvious he's next after me. What does DB#1 do? He tries to sidle in front of Wheelchair Guy. Like you know, he's reaaaaallly casual about it - he just sort of very casually begins to stick his foot in front of the guy's chair when I see him out of the corner of my eye. And I give him this look like, "Well, it's entirely up to you if you want to go to Hell this close to Christmas. I'm just sayin'." He sees me give him the look, and immediately withdrawls his foot and gets back behind the guy in the wheelchair where his line-cutting-a-crippled-person's ass belongs.

Then we have Douchebag #2, who is really honestly the more fun part of the story. He gets on line behind DB#1. So I'm standing there facing forward, and I hear DB#2 say, in this really really put-upon voice, "Excuse me!" Since my back is to him, I had no idea that he's actually talking to me. So I don't turn around, because it's not like I know I'm being addressed. Then I hear it a second time - "Excuse me!" - this time with far more outrage in his voice. I turn around, and DB#2 glances down at the guy in the wheelchair, and then says to me, again, in the same just utterly outraged and incensed voice, "Can you please MOVE so he can get through?!" Now, I don't know this particular man, but I'm assuming this is his version of the "Have You No Decency?" speech. I mean there are very nearly tears in his voice. So the guy in the wheelchair and I look at each other as if to say, "The hell?", and the guy in the wheelchair looks up at DB#2 and says, "Uhhh, I'm not trying to get through. I'm behind her in line." With this totally flat voice, like "Yeah thanks, Clark Kent - I'm good."
post #16 of 158
Thread Starter 
Quote:
Originally Posted by LisaNY View Post
A wasted opportunity, Cameron! Wasted, I tell you!
That's what my mother said. Said I really should have fucked with them. I'm too nice.
post #17 of 158
Nice try Kaiser Soze, but I'm fucking on to you.
post #18 of 158
You should follow Stephen Hawkins lead,

No word of a lie, he actually takes great pleasure in aiming for able bodied people in his chair if they try to molly coddle him. Many A time I visited my friend at Cambridge to see Mr. Hawking tearing rounds the grounds with his nurse running to keep up.

My buddy told me that he actually sped up the motor in his chair to do things like this.
post #19 of 158
Thread Starter 
Quote:
Originally Posted by Ken Savage View Post
You should follow Stephen Hawkins lead,

No word of a lie, he actually takes great pleasure in aiming for able bodied people in his chair if they try to molly coddle him. Many A time I visited my friend at Cambridge to see Mr. Hawking tearing rounds the grounds with his nurse running to keep up.

My buddy told me that he actually sped up the motor in his chair to do things like this.
I'm in a manual wheelchair.
post #20 of 158
A good friend has spina bifida, and she's writing a book with others detailing their experiences. Haven't heard any horror stories in particular, but stuff like that is exactly what she wants to write of.

My mother was/is very much the same way regarding my disability, she wants me to crack more jokes than I do. I just shrug instead.

While I have cerebral palsy, idiotic people have been remarkably rare. The worst is when I was working at my theatre job, ushering and waiting for patrons to come out of a showing. The movie's got about five minutes left, so I engage in small talk with a patron and her husband, who are waiting to get in. Without warning, the guy clasps my right hand (the side afflicted by CP) and mumbles something about God healing my arm. I'm so shocked that I can't say a word, while she apologizes about 50 times in the span of a minute.
post #21 of 158
Thread Starter 
Quote:
Originally Posted by Jim Barg View Post
A good friend has spina bifida, and she's writing a book with others detailing their experiences. Haven't heard any horror stories in particular, but stuff like that is exactly what she wants to write of.

My mother was/is very much the same way regarding my disability, she wants me to crack more jokes than I do. I just shrug instead.

While I have cerebral palsy, idiotic people have been remarkably rare. The worst is when I was working at my theatre job, ushering and waiting for patrons to come out of a showing. The movie's got about five minutes left, so I engage in small talk with a patron and her husband, who are waiting to get in. Without warning, the guy clasps my right hand (the side afflicted by CP) and mumbles something about God healing my arm. I'm so shocked that I can't say a word, while she apologizes about 50 times in the span of a minute.
Go ahead and link her to this thread. She could PM me too.

I've gotten the healing thing too, but it was a monk.
post #22 of 158
Thread Starter 
Quote:
Originally Posted by Phil View Post
Me either! I will begin treating you differently immediately...

I teared up as I imagined how long it must have taken you to type all that, what with your affliction and the challenges it brings. Good for you!
A few years ago I was hanging out with my best friend(A walkie), who I've known since second grade. He hit me on the shoulder hard for a snide comment and his friends were aghast at this. He looks at them coolly and says "Cameron's shoulders are bigger than our arms. He can take it."
post #23 of 158
Quote:
Originally Posted by Cameron Hughes View Post
Go ahead and link her to this thread. She could PM me too.

I've gotten the healing thing too, but it was a monk.
Sure, no problem.

If a monk did that, I could probably see some humor in the situation. Quote the Dalai Lama line from Caddyshack or something.
post #24 of 158
Thread Starter 
Quote:
Originally Posted by Jim Barg View Post
Sure, no problem.

If a monk did that, I could probably see some humor in the situation. Quote the Dalai Lama line from Caddyshack or something.
I saw no harm in it. It was respectful, I thought. He was a true believer, actually looked like he was from that area, and thought he was doing good. Makes a good story. Your guy just sounded self-righteous.
post #25 of 158
Quote:
Originally Posted by Cameron Hughes View Post
I saw no harm in it. It was respectful, I thought. He was a true believer, actually looked like he was from that area, and thought he was doing good. Makes a good story. Your guy just sounded self-righteous.
Ah, then in that case I'd probably blush and say a mumbled thanks.

Since he and his wife were pretty frequent visitors to the theatre afterwards, I got to see their interactions together. Judging by the way she would lead him around, I'd bet that he had some mental problems that impacted his interactions with people.
post #26 of 158
Quote:
Originally Posted by Cameron Hughes View Post
You have no idea how often I hear "You need a horn on that thing!" if I'm in a hurry. Or that I need a drink holder. Or a flag.(so people can see me coming.). My favorite though, of car jokes, is "You better slow down or you'll get a ticket!"
Quote:
Originally Posted by Cameron Hughes View Post
I'm in a manual wheelchair.
Well, so much for my suggestion for Big Daddy Roth style wheels and shifter.
post #27 of 158
Quote:
Originally Posted by Cameron Hughes View Post
That's what my mother said. Said I really should have fucked with them. I'm too nice.
Your mother is at the very least a good, if not great, woman.
post #28 of 158
This thread is funny in the best possible way.
post #29 of 158
Quote:
Originally Posted by Ken Savage View Post
You should follow Stephen Hawkins lead,

No word of a lie, he actually takes great pleasure in aiming for able bodied people in his chair if they try to molly coddle him. Many A time I visited my friend at Cambridge to see Mr. Hawking tearing rounds the grounds with his nurse running to keep up.

My buddy told me that he actually sped up the motor in his chair to do things like this.
I was friends with a girl back in college who used her motorized wheelchair to "accidentally" run over the feet of people who pissed her off (she had some form of spinal deterioration). She'd do an "I'm so sorry" routine, which would get her a sympathetic "It's OK", then she'd shoot me this absolutely wicked grin as we'd watch her victims hobble off.
post #30 of 158
Thread Starter 
Quote:
Originally Posted by Timothy225 View Post
I was friends with a girl back in college who used her motorized wheelchair to "accidentally" run over the feet of people who pissed her off (she had some form of spinal deterioration). She'd do an "I'm so sorry" routine, which would get her a sympathetic "It's OK", then she'd shoot me this absolutely wicked grin as we'd watch her victims hobble off.
Oh, I've done that. I'm nice, but not above petty revenge. I used to do this in elementary and middle school and when told on, an adult would usually say something like "Cameron would NEVER do a thing like that!" and since I only did that to jerks and was otherwise nice(Seriously, I kinda was Artie from Glee without the glasses and more muscular in High School) and well-liked, I never got in trouble.

I did get in trouble in High School. Kinda. This guy had a hobby of taking a running start and jumping over me when he saw me in the quad where I'd be reading. One day I got tired of it, put on some leather gloves I wear sometimes for pushing, and just as he jumped over me, I raised my fist and he went down as it hit his crotch. There were witnesses, I went to the princepal's office where I told my story. He burst out laughing and let me off with a warning. It really paid to be nice and a decent student.
post #31 of 158
Thread Starter 
Quote:
Originally Posted by Chavez View Post
Your mother is at the very least a good, if not great, woman.
My mom is awesome. And weird. I got her sense of humor, but my dad's sense of decency.
post #32 of 158
I can see it getting very annoying when people patronize you and you don't need it. But the door holding thing is just awkward. I would think that a lot of people are afraid they'll look like a selfish prick if they don't hold the door open for someone in a wheel chair. After all, we don't know how difficult it is to go through doors in a chair, so I think a lot of people just assume it's more difficult than it is.
post #33 of 158
Thread Starter 
Quote:
Originally Posted by stunt poop View Post
I can see it getting very annoying when people patronize you and you don't need it. But the door holding thing is just awkward. I would think that a lot of people are afraid they'll look like a selfish prick if they don't hold the door open for someone in a wheel chair. After all, we don't know how difficult it is to go through doors in a chair, so I think a lot of people just assume it's more difficult than it is.
That's why I don't normally mind. It's better to ask first though.
post #34 of 158
I agree with you in every sense, Cameron; the condescending attitude is easily an insult to any person who's managed to live his own life just like anybody else, disability or not.
Your story and the comments hit a bit close to home as well; one of my uncles (he's my dad's cousin, but since my dad's family is from the "country", they were all pretty damn close (not in "that" sense)) was a fireman, and he fell through a collapsing roof on top of a bunch of heavy machinery during a fire, and he lost the use of his legs.
He had to be amputated this year because of health issues, and I still remember how annoyed he looked when the nurses and some of his visitors kept treating him like he was a porcelain doll...when he's lived 25 years already without the use of his legs (Hi usual response when the nurses explained to him everyday the "getting out of the stretcher/bed procedure? "Ladie's, i know the procedure; been doing it every day for 25 years").
And this is a guy who´s first word when I arrived to see him was if i wanted to sit on the "unused side of the bed" just to mess with me and have a laugh at my expense.
I think you're right on the money on here; sure, it should be common sense/decency to be helpful and respectful to someone with a physical disability, but when you become condescending and treat that person like he/she isnt capable of living his life, you're insulting that person in the worst way possible.

PS: I also used to have a friend in Ecuador (back when i traveled there every year as a kid to be with the family) who had lost a leg as an infant, and he wore a prosthesis; this kid never, ever, asked to be treated different or pitied; hell, the same night i meet him (he was the son of a fiend of my mom) my mom said to me to be "sensitive and open minded" around him; When went out for burgers together that night to get away from the adults (he asked to grab a hold of my shoulder as he walked along the way because he had been swimming earlier and was a bit tired), a really fucking big dog tried to attack us...and this kid takes of his prosthetic limb and send the beast packing with one hit!
I asked him what the fuck was he thinking, and he just replied "well, its not like i could had kicked it; we would both had fallen down if i did!".
post #35 of 158
Quote:
Originally Posted by DARKMITE8 View Post
I look forward to the next installment of your "Cripple Chronicles".

You need to install a cow-catcher/snowplow on the front of your chair and ram people.
I decided to search for this on google just to see if i could find an image; instead I found a way awesome Mr. Plow, so to speak:

http://keywestsnowremoval.com/

post #36 of 158
Quote:
Originally Posted by stunt poop View Post
I can see it getting very annoying when people patronize you and you don't need it. But the door holding thing is just awkward. I would think that a lot of people are afraid they'll look like a selfish prick if they don't hold the door open for someone in a wheel chair. After all, we don't know how difficult it is to go through doors in a chair, so I think a lot of people just assume it's more difficult than it is.
I'd hold a door open for a guy in a wheelchair...then again I'd hold a door open for a woman...or any other human being who needs to cross a threshhold.

Guess I'm just an asshole that way.
post #37 of 158
Thread Starter 
Wanna know how my people slow-dance?

Girl(Or guy if you swing that way) sits on your lap. Dead serious.
post #38 of 158
This thread made me think of a friend of a friend who has a blog...

http://loveonwheelz.net/
post #39 of 158
It's tricky. I try to be as rude as possible around cripples, so as not offend them.

I'm also pretty happy to be called a walkie!

In all seriousness, the waters can be a little hard to navigate (as mentioned, you don't really want to be rude and well, I'd hold the door open for anyone following close behind or in front so long as their hands are full or they're in a wheelchair).

Kudos for putting up with being talked down to (figuratively speaking!) and being mistaken for slow!
post #40 of 158
Quote:
Originally Posted by Cameron Hughes View Post
Wanna know how my people slow-dance?

Girl(Or guy if you swing that way) sits on your lap. Dead serious.
That is fantastic. "Want to grab my gear stick to help me drive?" BOOM.
post #41 of 158
Thread Starter 
Quote:
Originally Posted by whiskaz View Post
It's tricky. I try to be as rude as possible around cripples, so as not offend them.

I'm also pretty happy to be called a walkie!

In all seriousness, the waters can be a little hard to navigate (as mentioned, you don't really want to be rude and well, I'd hold the door open for anyone following close behind or in front so long as their hands are full or they're in a wheelchair).

Kudos for putting up with being talked down to (figuratively speaking!) and being mistaken for slow!
There's a reason I'm usually okay with people going out of their way to open doors for me. I know its usually good-natured, but imagine having half your body as dead weight. You have to work twice as hard to fit in and prove you're just like everyone else. Sometimes it feels like a walking person assumes we're too weak to open doors for ourselves. It's a self-esteem thing and it sucks. Sometimes I need to do everything for myself just to feel good.

I also don't like people suddenly pushing my chair without asking if I'm going up a hill. Its an assumption that I'm weak and an invasion of my privacy.
post #42 of 158
Thread Starter 
Have I told my Hawaii story?

This was last March, I'm at Left Coast Crime and organize a big dinner. Barry Eisler, Tim Maleeny, Jason Starr, Sophie Litttlefield, a ton of other cool people. I'm sitting at one end of the table with Barry Eisler and a cozy writer whose name I won't reveal(She writes cozies about a fat girl lawyer though). We're all having a good time, Barry, she, and I are talking and suddenly she leans over and says with a wink "Cameron, you should read my books. There's a guy in a wheelchair in them." I just smile and nod. Later that night Tim Maleeny tells me I should have asked her if he's white too, because I only read novels that have white crippled guys.
post #43 of 158
So have you read her book since finding out it was personally tailored to 'your kind'?
post #44 of 158
Thread Starter 
Quote:
Originally Posted by The Rain Dog View Post
So have you read her book since finding out it was personally tailored to 'your kind'?
Later that night, she nudges me on the shoulder and says "The guy in the wheelchair got the girl."

I did try reading the book. Its not good. Like, at all.
post #45 of 158
I had a traumatic spinal injury about 2 years ago and I had to spend about a year in a wheelchair. I didn't realize how much people try to baby you. You are in a wheelchair but they act and treat you like you are mentally handicapped and can't do anything for yourself. For a little while it was kinda cool having everyone rush to open doors and treat you like a kid but that shit got old pretty quick. If you see a person in a wheelchair don't go out of your way to"Help the poor cripple" because most times they can usually get around just fine on their own.
post #46 of 158
Cozies?
post #47 of 158
Quote:
Originally Posted by Cameron Hughes View Post
Later that night, she nudges me on the shoulder and says "The guy in the wheelchair got the girl."
Kinda sounds like she was coming onto you. Should've hit that!
post #48 of 158
Kinda sounds? It totally sounds like she was hitting on you. In a retarded fashion. And by retard I don't mean short bus.
post #49 of 158
Thread Starter 
Quote:
Originally Posted by Phil View Post
Cozies?
http://en.wikipedia.org/wiki/Cozy_mystery
post #50 of 158
Wow. Didn't realize I was an asshole for holding doors open for people.
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