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Guillain-Barre Syndrome Question

post #1 of 4
Thread Starter 

Have any of you Chewers had experience, or know someone who has had experience, with Guillain-Barre syndrome?  I'm looking for someone to compare notes with.   My dad was recently diagnosed with this rare disorder and it would be great to have some personal stories to share with him instead of a list of facts from Wikipedia and the NIH web site. 

 

Guillain-Barre syndrome is an autoimmune disorder with indeterminate causes that usually starts with tingling and numbness in the feet and legs, and can lead to temporary total paralysis.  Luckily it didn't progress that far for my dad, but he's still unable to walk right now.  He's been hospitalized for two weeks and his symptoms started approximately two to three weeks before that.  He's had an IVIG course and they're basically just trying to find a place for him to do his rehabilitation. 

post #2 of 4

i have nothing to offer except much sympathies and support for your dad.

post #3 of 4

Someone close to me had/has this. Spent a long time in the hospital and still suffers from weakness years later.

It's a long road and life changing.

 

Sorry to heard about it.

post #4 of 4
Thread Starter 

Thanks, Dave and jay f. 

Obviously he could be doing much worse.  Coincindentally, in grad school I read Joseph Heller's memoir about his bout with Guillain-Barre (the co-author, Speed Vogel, was my memoir writing instructor's boyfriend or lover or hetero life-mate - we could never figure it out) and he ended up being put on a respirator.  I think once my dad gets into a physical therapy program he'll improve.  He's slogging through a lot of red tape right now with the MassHealth system and it's got him down.  

 

Well wishes are definitely appreciated, but I do want to stress that I'm not looking for a pity party here.  I'm in the process of casting out a few nets and figured the old Chewer Sewer is always worth a try. 

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